The excerpt below is from the Foundation’s 2017-18 Annual Report, which can be found in it’s entirety on the Foundation’s website 

 

Generating Actions, Building Systems

The Complex Chronic Disease Program (CCDP) at the BC Women’s Hospital and Health Centre, which has been extensively supported by the Foundation over the last five years, includes a clinic and a clinical research program of Fibromyalgia, Chronic Fatigue Syndrome and/or Chronic Lyme-Like Syndrome.

The newest project that we are pleased to fund, over the next five years, is the CCDP Data Registry. Led by investigator Dr Wee-Shian Chan, this multi-year project aims to characterize the CCDP patient population to better serve the population and have better understanding of these debilitating conditions. This registry will be accessible by researchers over an extended period of time that will hopefully lead to improved assessments and therapeutic interventions for the tens of thousands of individuals in BC with symptoms or a diagnosis of Fibromyalgia, Chronic Fatigue Syndrome and/or Chronic Lyme-Like Syndrome. It is with innovative data collection and clinical research programs that conditions such as these will be better understood, and patients will have access to better outcomes.